Using Newborn Screening Data for Research

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A study by Beth Tarini, MD, has found that more than three-quarters of parents would be willing to permit use of their newborn's blood screening sample for research if their permission were obtained in advance. However, more than half of the parents said they would be "very unwilling" to permit this use of blood samples unless they were given a chance to grant or deny permission. For a discussion of this important article, go to http://www2.med.umich.edu/prmc/media/newsroom/details.cfm?ID=1217