Beth Tarini's 2009 study cited by US News & World Report
Wed, May 21, 2014
Beth Tarini's 2009 study regarding use of newborn screening samples for research was cited in US News & World Report, which found only 28.2 percent of parents were “very or somewhat willing” to consent to research using their child’s blood samples if their permission were not obtained. In fact, without consent, 55.7 percent would be “very unwilling.”
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