Preparing Research on Ethical and Psychological Issues in Cancer Genome Sequencing (PREP-ONCOSEQ) (2011-2012)

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Funded by University of Michigan Comprehensive Cancer Center Research Grants Program

Funding Years: 2011-2012

Pilot study research aims:

  1. Develop and optimize procedures for future studies that elicit informed, deliberative views of cancer patients regarding disclosure preferences that should be included in informed consent for genome sequencing.
  2. Examine how a multi-disciplinary team of experts, Precision Medicine Tumor Board, determines which test results should be returned to cancer patients and clinicians, and how that information is received by referring clinicians.
  3. Develop and pilot interview guides to identify barriers to effective communication of sequencing results to patients.

J. Scott Roberts (PI), Raymond De Vries (Co-I), Scott Kim (Co-I), Brian Zikmund-Fisher (Co-I), Sameek Roychowdhury (Co-I)