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CBSSM Seminar: Jodyn Platt, MPH, PhD

Thu, October 08, 2015, 3:00pm to 4:00pm
NCRC, Building 16, Room 266C

Jodyn Platt, MPH, PhD

Research Investigator
Department of Learning Health Sciences

Terms and Conditions for Trust in Learning Health Systems

The next generation of health information technology, organized as “learning health systems,” promises efficient, engineered solutions to the well-known and enduring maladies of the existing U.S. health infrastructure: escalating costs, poor health outcomes, ineffective use of technology, sluggish research pipelines, dangerous medical error rates, and failure to implement known clinical best practices. Learning health systems would capitalize on "big data" enterprises to accelerate the production and application of knowledge in health care. However, the sharing of health information required, both within and across institutions, greatly exceeds the public’s understanding.  These initiatives are riding a precarious edge as the gap between public expectations and the realities of institutional data sharing widens at an unprecedented rate.  This presentation considers the causes and consequences of trust and mistrust of health information systems, their data sharing practices, and their policy implications. 


Jennifer Skillicorn, DrPH, MPH

Research Associate

Jennifer joined CBSSM in August 2017. She works with Dr. Susan Goold and community partners on grant funded research projects related to evaluating Medicaid expansion and its impact on beneficiaries through the Healthy Michigan Plan and ways in which to engage minority and underserved communities in setting priorities for community health.

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James Burke, MD


Jim Burke, M.D. is a neurologist who completed residency and a stroke fellowship at the University of Michigan. His undergraduate degree is from the University of Notre Dame and his medical degree from the Loyola University Stritch School of Medicine. He is interested in understanding how physicians use the complex information acquired from modern diagnostic tests and improving decisions to order such tests.

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Edward Goldman, JD, BA


From 1978 to 2009, Ed was head of the U-M Health System Legal Office.  In 2009 he moved into the Medical School Department of ObGyn as an Associate Professor to work full-time on issues of sexual rights and reproductive justice.  He has teaching appointments in the Medical School, the School of Public Health, the Law School, and LSA Women's Studies.  He teaches courses on the legal and ethical aspects of medicine at the Medical School, the rules of human subjects research at the School of Public Health and reproductive justice in LSA and the Law School..  In 2011, Ed went to Ghana and helpe

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Funded by the NIH

This project seeks to identify concrete policies and practices that can better serve both people and institutions in building local, state, and national health information systems necessary to maximize the potential of data throughout its life cycle. We will focus on five intertwined and endemic issues to the life cycle of data that arise in precision oncology: (1) informed consent, (2) duration of specimen storage; (3) storage of germline DNA sequence data (4) disclosed commercialization; and (5) data sharing at local, state, and national levels. Our proposed research will identify public preferences for specific policies and practices governing these issues thus addressing a major gap in understanding how the public views data as it flows across functional boundaries - clinical care, quality improvement, research and public health - and across local, state, and national levels.

Our interdisciplinary research team with expertise in policy, learning health systems, ethics, precision oncology, and public health genomics has partnered with an expert advisory team that spans these levels and boundaries. Specifically, at the local level we are engaging the University of Michigan Health Systems Institutional Review Board (IRB), Comprehensive Cancer Center, Central Biorepository, Compliance Office, and precision oncology researchers (MI-ONCOSEQ). At the state level, we are interacting with the Michigan Health Information Network (MiHIN) that coordinates 10 health exchanges with the Michigan Department of Health and Human Services. At the national level, we are engaging with the multi-state PCORI-funded LHSnet, the American Society of Clinical Oncology's CancerLINQ, which will combine data across practices for quality improvement.

Using an explanatory sequential design, we will investigate the public's knowledge, attitudes, and acceptance of data policies and practices using case studies that illustrate the life cycle of data in precision oncology and conduct deliberative sessions to identify recommendations for changes in institutional practices/policies. We will then quantitatively assess whether these recommendations ameliorate concerns and identify optimal policies through conjoint analysis using a longitudinal follow-up survey conducted at the state and national scale.


PI: Sharon Kardia

CBSSm Co-Is: Raymond De Vries, Kayte Spector-Bagdady, & Jodyn Platt

2013 CBSSM Research Colloquium and Bishop Lecture (Ruth Macklin, PhD)

Wed, April 17, 2013 (All day)

The Center for Bioethics and Social Sciences in Medicine (CBSSM) Research Colloquium took place at the Founders Room, Alumni Center (200 Fletcher Street, Ann Arbor, MI 48109) on April 17, 2013.  The Colloquium featured presentations focusing on bioethics and social sciences in medicine across multiple disciplines.  

The 2013 Presenters were: 

  • Mieko Yoshihama, PhD, ACSW, LMSW: PhotoVoice: Promoting individual wellbeing and improving disaster response policies in Japan and beyond
  • Carol Jacobsen, MFA: Representing torture of women in custody in the U.S.
  • Michele C. Gornick, PhD: Do non-welfare interests play a role in willingness to donate to biobanks?
  • C. Daniel Myers, PhD, Daniel B. Thiel, MA: Which research? Public engagement and opinions about the research use of biobank samples
  • Ann Mongoven, PhD, MPH: Whose sense of public good? Public engagement results from the Michigan BioTrust and ethical implications
  • Andrea C. Sexton, BA: Citizen recommendations for communication about biobank participation and consent: Considering source, message, channel, receiver, and timing
  • Monica Marvin, MS: Comparing male and female BRCA mutation carriers’ communication of their BRCA test results to family   members
  • Allyce Smith, MSW: A Gift for All: Everyone has something to give - Approaching dialysis patients about donating their organs
  • Danielle Czarnecki, PhD Candidate: Putting patient-physician communication in context: An empirical analysis of sequential organization and communication transitions during visits for new diagnoses of early stage prostate cancer.

Thomas Valley, MD


Tom Valley is an Assistant Professor in the Division of Pulmonary and Critical Care Medicine in the Department of Internal Medicine at the University of Michigan. He received his undergraduate degrees in history and chemistry from Emory University, and his medical degree from the University of Miami. He completed his internal medicine residency and chief residency at the University of Texas-Southwestern/Parkland Memorial Hospital.

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Christian Vercler, MD, MA


Christian Vercler is a Clinical Associate Professor of Pediatric Plastic Surgery at the University of Michigan C.S. Mott Children’s Hospital. He is a service chief of the Clinical Ethics Service in the Center for Bioethics and Social Sciences in Medicine (CBSSM). Dr. Vercler has a special interest in ethics in surgery and he holds master's degrees in both Theology and Bioethics. He has a passion for teaching medical students and residents and has won teaching awards from Emory University Medical School, Harvard Medical School, and the University of Michigan.

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Lisa Harris, MD, PhD


Dr. Harris’ research examines issues at the intersection of clinical obstetrical and gynecological care and law, policy, politics, ethics, history, and sociology. She conducts interdisciplinary, mixed methods research on many issues along the reproductive justice continuum, including abortion, miscarriage, contraception, in vitro fertilization (IVF), infertility and birth, and racial, ethnic, and socioeconomic disparities in access to reproductive health resources.

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Michele Gornick, PhD, MA


Dr. Michele Gornick is a Research Investigator in the Department of Internal Medicine at the University of Michigan Medical School. Her background training is in cancer genetics, with a focus on using quantitative methods to better understand the genome. Dr. Gornick joined CBSSM to pursue her interest in translational medicine, specifically dealing with issues surrounding communicating genomic information to patients, physicians and other health care providers. She was a VA and CBSSM Postdoctoral Fellow, 2012-2015.


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