F. Jacob Seagull, Ph.D. is an Assistant Professor of Medical Education at the University of Michigan Medical School. His research interests include patient safety, human perception and preformance, technology design and implementation, and human factors.
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Reshma Jagsi MD, DPhil, Professor and Deputy Chair, Department of Radiation Oncology, Director, Center for Bioethics and Social Sciences in Medicine, and Megan Knaus, MPH, Research Associate of CBSSM will be seeking feedback on a survey draft. As part of a Greenwall Foundation project, this survey aims to study patient and public perspectives on the ethical issues in fundraising from patients, with a goal of understanding where current practices may diverge from what patients and the general public view to be acceptable, in order to focus deliberation on where changes to current practice and policies may be needed.
This two-day conference took place on the UM campus and is presented by the University of Michigan Medical School. It was also supported by the Office of the Vice President for Research; the Center for Ethics and Public Life; Rackham Distinguished Faculty Grant; Greenwall Foundation; and Institute for Social Policy and Understanding. Click here for conference videos, course packets, and reference materials.
Dr. Scherer was a VA and CBSSM Postdoctoral Research Fellow, 2010-2012. She received her PhD in social psychology in 2010 from Washington University in St. Louis.
Dr. Scherer is currently an Assistant Professor of Psychological Sciences at the University of Missouri.
Vaccine refusal has an impact on public health; however, research has shown that it is very difficult to change attitudes towards vaccines. People are often hesitant about vaccines because they don’t trust that potential harms are documented and reported. The question is: how can we increase trust and vaccine utilization?
This special interest group is led by Dr. Scott Roberts who is an Associate Professor in the Department of Health Behavior and Health Education at the School of Public Health as well as the Director and Co-Director of the Public Health Genetics Certificate Program and the Dual Degree Program in Public Health and Genetic Counseling, respectively. Research within this area examines the ethical, social and behavioral implications of advances in genomics. CBSSM serves as a crucial locus for facilitating collaborations across disciplines and units. In fact, several groups across campus have invited us to collaborate on the study of bioethical issues related to burgeoning genomics-related research; these partners include investigators at U-M’s Comprehensive Cancer Center, the Michigan Center for Translational Pathology, and the Division of Pediatric Genetics.
Topics of interest include the following:
- The psychological and behavioral impact of genetic testing (Scott Roberts; Brian Zikmund-Fisher)
- Communication of genetic risk information (Michele Gornick; Scott Roberts; Beth Tarini; Brian Zikmund-Fisher)
- Direct-to-consumer genetic testing (Scott Roberts)
- Healthcare provider education in genomics (Scott Roberts)
- Informed consent in genomic research (Michele Gornick)
- Expert decision-making in genomic medicine (Raymond De Vries)
- Public understanding of genomics (Michele Gornick; Scott Roberts)
- Ethical and policy implications of genomic discoveries (Michele Gornick; Raymond De Vries)
Dr. Aisha Langford was a VA and CBSSM Postdoctoral Research Fellow, 2013-2015. She received her PhD from the department of Health Behavior and Health Education at the University of Michigan School of Public Health in Ann Arbor. From 2007 -2013, she directed the University of Michigan Comprehensive Cancer Center’s Community Outreach Program. Her research interests include chronic disease prevention and control, health communications, medical decision making, and clinical trial participation. Aisha is from the San Francisco Bay Area and earned her BA from the University of Virginia.
Michele Gornick, PhD
VA HSRD Fellow & CBSSM Research Investigator
Title: The public’s preferences for the return of secondary findings identified through genome sequencing: Information and deliberation make a difference
Summary: Genomic sequencing is becoming a part of clinical practice. Existing studies are limited and conclude that people would like unrestricted access to all of their genetic information. However, we do not know the extent to which respondents in these studies took into account the complex scientific and ethical issues that attend genome sequencing. In order to address this gap, we organized a deliberative democracy (DD) session to educate members of the public on genome sequencing, to engage them in dialogue about the benefits and risks of the clinical implementation of this technology, and to elicit their informed perspectives about policies governing the return of secondary findings.