The Center for Bioethics and Social Sciences in Medicine (CBSSM) Research Colloquium was held Tuesday, May 1, 2018 at the Henderson Room, Michigan League, 911 N. University Avenue, Ann Arbor, MI 48109.
The CBSSM Research Colloquium featured the Bishop Lecture in Bioethics as the keynote address. Barbara Koenig, PhD presented the Bishop Lecture with a talk entitled: “Does Enhancing Individual Choice and Control Promote Freedom? Challenges in Contemporary Bioethics."
Barbara A. Koenig, Ph.D. is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She is the Director of “UCSF Bioethics,” a nascent program that spans ethics research, clinical ethics, and ethics education across the university’s four professional schools. Prof. Koenig pioneered the use of empirical methods in the study of ethical questions in science, medicine, and health. Prof. Koenig’s current focus is emerging genomic technologies, including biobanking policy and using deliberative democracy to engage communities about research governance. Her work has been continuously funded by the National Institutes of Health since 1991. Currently, she: 1) directs the ELSI component of a NICHD award focused on newborn screening in an era of whole genome analysis, 2) is P.I. of UCSF’s Program in Prenatal and Pediatric Genomic Sequencing (P3EGS), part of the CSER2 national network, and, 3) is supported by NCI to conduct an “embedded ethics” study of the Athena “Wisdom” PCORI-funded clinical trial of genomic risk-stratified breast cancer prevention. Previously, she directed an NHGRI-funded “Center of Excellence” in ELSI Research. Prof. Koenig was the founding executive director of the Center for Biomedical Ethics at Stanford University; she created and led the Bioethics Research Program at the Mayo Clinic in Rochester, Minn. She received her Ph.D. from the University of California, Berkeley and San Francisco joint program in Medical Anthropology. She is an active participant in policy, having served on the ethics committee that advises the director of the CDC and the Department of Health and Human Services “Secretary’s Advisory Committee on Genetic Testing.” She recently served on a state-wide “Health Data Governance Task Force” which advised UC’s president.
The CBSSM Research Colloquium (9 a.m. to 2 p.m.) brings together presenters highlighting research related to bioethics, health communication, and medical decision making.
2018 Colloquium Schedule:
- 8:30 Check in, refreshments
- 9:05 Welcome
- 9:10 Presentation 1: “Parent Perceptions of Antenatal Consultation for Extreme Prematurity" Stephanie Kukora, MD
- 9:35 Presentation 2: “Hospice Care Quality in U.S. Nursing Homes Reported by Patients and Caregivers in Yelp Reviews” Chithra Perumalswami, MD, MSc
- 10:00 Medical Student in Ethics Award: Megan Lane
- 10:10 Presentation 3: “Impact of MCI on Patient and Care Partner Preferences and Physician Decision Making for Cardiovascular Treatment” Bailey Reale, MPH & Emilie Blair
- 10:35 Presentation 4: “It’s all about Context: A Mixed-Methods Study of Local Context Assessment by Institutional Review Boards” Adrianne Haggins, MD
- 11:00 Break
- 11:15 Bishop Lecture: Barbara Koenig, PhD
- 12:45 Lunch