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Beth Tarini and Scott Roberts spoke at the Michigan State Medical Society’s 17th Annual Conference on Bioethics, "Putting the Me in Medicine: The Ethics of Personalized Medical Care"

For more information on the conference, you can visit its website here.

Previous and current CBSSM faculty were all smiles when they were reunited at the The 35th Annual Meeting of the Society for Medical Decision Making, last Saturday, Oct. 19th. 

ASBH Members: ASBH is now accepting applications for 2013 Early Career Scholar Grants. The early career scholar grants are intended for students who are no more than three (3) years removed from their study program and who are beginning their careers in the field. The grants are intended to help alleviate some of the expenses associated with attending the ASBH Annual Meeting. The application is available here. The deadline to apply is August 23, 2013.

American Society for Bioethics + Humanities (ASBH)
4700 W. Lake Avenue

Glenview, IL 60025

www.asbh.org

 

Masahito Jimbo, MD, PhD, MPH

Faculty

Masahito Jimbo is Professor of Family Medicine and Urology at the University of Michigan. Having worked as a family physician in both urban (Philadelphia) and rural (North Carolina) underserved areas, he has first-hand knowledge and experience of the challenges faced by clinicians and healthcare institutions to be successful in providing patient care that is personal, comprehensive, efficient and timely. Initially trained in basic laboratory research, having obtained his MD and PhD degrees at Keio University in Tokyo, Japan, Dr.

Last Name: 
Jimbo

Peter A. Ubel has been selected by the Robert Wood Johnson Foundation as a recipient of a prestigious Investigator Award in Health Policy Research for 2008. Dr. Ubel, who was director of the Center for Bioethics and Social Sciences in Medicine, plans to examine how beliefs about quality of life affect the choices made when patients seek treatment, when payers determine coverage policies, and when policy-makers weigh programmatic or financial options. His project, Emotional Adaptation and the Goals of Health Care Policy, will introduce insights from well-being research, which studies how physical illness and emotional well-being are intertwined, to debates about cost-effectiveness of medical treatments, coverage decisions by payers, and discussions about health care priorities.

Funded by the National Institutes of Health

Funding Years: 2013-2018

Chronic kidney disease (CKD) affects 20 million Americans. CKD can lead to end stage renal disease and is associated with morbidity and mortality at all stages. Early management decreases complications and may ameliorate disease progression, but is often reliant on patient self-care. Research suggests that a large proportion of patients lack fundamental knowledge about kidney disease, its implications, and self-care necessary to attenuate CKD progression to end stages. Patient decision aids are designed to facilitate disease communication, increase patient knowledge, clarify patients'values and engage patients in care. There have been no studies using patient decision aids in pre-dialysis CKD. Moreover, there is a paucity of data available to guide development of CKD patient decision aids for use in practice. The primary goal of this research proposal is to elicit stakeholder (i.e. patient and provider) input on information needs and preferences for developing a CKD decision aid that will 1) support patient-centered CKD communication, 2) facilitate shared learning and decision making between patients and providers, and 3) optimize patient engagement in care. To accomplish this objective, I propose to conduct three inter-related but independent studies. First, I will determine information needs and factors that influence self-care in patients with pre-dialysis CKD using structured interviews and a survey in 250 patients seen in the University of Michigan nephrology outpatient clinics. Second, I will identify physician perspectives about what they need to support patient CKD education and to effectively engage patients in care by conducting structured interviews of fifty physicians (25 primary care, 25 nephrology) who practice in the University of Michigan Ambulatory Clinics. The interviews and survey questions in the first two aims will be grounded on two quality improvement methods namely, cause/effect analysis and quality function deployment. Informed by the first two aims, I will develop and test a patient- centered decision aid, designed to facilitate patient-physician communication and support patient decision making and self-care in pre-dialysis kidney disease. The aid will be tested in a randomized trial with the decision aid the exposure, and intermediate patient modifiable characteristics (knowledge, self-efficacy, and treatment decisional conflict), as co-primary outcomes. The proposed research is likely to improve our understanding about the needs and preferences of key stakeholders involved in CKD communication and care, and provide insight into the effectiveness of patient-centered education interventions on outcomes in pre- dialysis kidney disease.

PI(s): Julie Wright, Angela Fagerlin

Co-I(s): Eve Kerr, Akinlolu Ojo

Lauren Smith, Robert Silbergleit, Sacha Montas and colleagues fielded a great team in this year’s Big Ethical Question Slam. The Ethics slam is an annual community event hosted by A2Ethics.org.

Wendy Uhlmann, MS, CGC

Faculty

Wendy R. Uhlmann, MS, CGC is the genetic counselor/clinic coordinator of the Medical Genetics Clinic at the University of Michigan. She is a Clinical Professor in the Departments of Internal Medicine and Human Genetics and an executive faculty member of the genetic counseling training program. Wendy Uhlmann is a Past President of the National Society of Genetic Counselors and previously served on the Board of Directors of the Genetic Alliance and as NSGC’s liaison to the National Advisory Council for Human Genome Research.

Last Name: 
Uhlmann

Ed Goldman was awarded a Rackham Michigan Meetings grant to put on a three-day conference on international aspects of reproductive justice, scheduled for May 29 - June 1, 2013.  The conference will ask how academia can set its research agenda to help further the goals of advocacy groups, focusing on ways to transmit medically accurate facts to various decision-makers (legislators, governments, etc.).

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