Andrea was a Research Fellow at CBSSM from 2009-2011 and from 2012-2014 a Research Area Specialist for CBSSM’s Ethics in Medical Education Initiative.
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Fraukje Mevissen is an Assistant Professor in Applied Psychology at Maastricht University, Dept. of Work and Social Psychology. Dr. Mevissen was a Visiting Scholar at CBSSM from January-July 2014. For her PhD, she studied risk communication and risk perception regarding sexually transmitted infections among young adults at the department of Health Education and Promotion. She then continued as a postdoc researcher at the W&SP department, focusing on development and evaluation of behavioral/health interventions.
Scott Grant, MD, MBE, University of Chicago: "Dealing with complications and poor outcomes and surgical futility"
Scott Grant, MD, MBE, University of Chicago
Abstract: Surgical complications are ubiquitous and effect all surgeons. This talk will review how surgical ethics is distinct from traditional medical ethics in that surgeons have a greater and more direct responsibility for the outcomes of their patients than medical doctors. It will review how surgery harms before healing and the importance of weighing risks and benefits in decision making. Ways of assessing perioperative risk and preventing complications will be reviewed. Strategies for coping with complications will be described. Human error theory and the "Swiss cheese" model of human error will briefly be discussed. The SPIKES protocol for breaking bad news will be reviewed. Different deﬁnitions of futility will be described. Various procedural approaches to futility disputes will be analyzed. The best tool in approaching challenging "futility" situations will be described - open and honest communication between the patient or surrogate and the physician.
Funded by Robert Wood Johnson Foundation
Funding Years: 2013-2014
Patients and the public are being inundated with a flood of health data and being asked to take a greater role in applying this data to make medical decisions regarding their own health. While general guidelines exist for "best practices" in medical risk communication, this work has not always considered the specific communication goals of the risk message or the specific information or practical needs of the patient. The Communicating Health and Risk Messages (CHARM) project will address the gap in our current knowledge by informing the design of health risk data visualizations across the full spectrum of risk communication goals.
PI(s): Vic Strecher, PhD, MPH
Co-I(s): Lawrence An, Angela Fagerlin, Kenneth Resnicow, Brian Zikmund-Fisher
The CBSSM Working Group is a forum for investigators interested in CBSSM-related topics (e.g., patient communications, decision making, ethical dilemmas, etc.) to participate in the CBSSM community by sharing their ideas and receiving constructive feedback. These meetings provide an opportunity to receive feedback on research proposals, survey instruments, interview guides, drafts of papers, grant applications, or any other aspects of projects at any stage of development. Our goal is to provide an informal setting that can help to move a project forward, and repeat visits are allowed as appropriate.
While participation in Working Group is not formally limited to CBSSM affiliates, we ask and expect that presenters return the favor for others by participating in other Working Group sessions beyond their own, ideally becoming part of the CBSSM community. The Working Group is not an external service but a part of the CBSSM community's commitment to support each other's research and learning. We welcome those interested in CBSSM to use the Working Group as an opportunity to meet potential collaborators, to learn new methods and perspectives, and to share their own insights to the betterment of others.
Holly Fernandez Lynch, JD, MBe, “Defining and Advancing IRB Quality and Effectiveness.”
Empirical data demonstrates various concerns regarding the existing system of research ethics oversight by Institutional Review Boards, including inconsistent decisions, inefficiency, and nontransparency. However, evaluating positive elements of IRB oversight is far more challenging. How can we tell if IRBs are successfully doing what they were created to do? In this lecture, Professor Holly Fernandez Lynch will examine the difficulties associated with defining and measuring IRB quality and effectiveness and introduce several projects underway by the Consortium to Advance Effective Research Ethics Oversight (AEREO). She will discuss preliminary data from interviews with IRB stakeholders and analysis of existing IRB evaluation instruments, introduce a pilot project to promote the development of IRB precedent, describe a proposal to incorporate the patient perspective into IRB review, and explore whether IRBs are intended to provide substantive or procedural protections.
Dr. Jason Karlawish, Professor of Medicine and Medical Ethics at the University of Pennsylvania, will discuss his forthcoming novel, "Open Wound: The Tragic Obsession of Dr. William Beaumont" on Thursday, October 20, 3-5 pm, at the Biomedical Research Science Building (BSRB), Room 1130. "Open Wound" is a fictional account of true events along the early 19th century American frontier, tracing the relationship between Dr. William Beaumont and his illiterate French Canadian patient. The young trapper sustains an injury that never heals, leaving a hole in his stomach that the curious doctor uses as a window both to understand the mysteries of digestion and to advance his career. A reception will follow the talk, and books will be available for purchase on site from Nicola's Books. The event is co-sponsored by the Center for Bioethics and Social Sciences in Medicine, the Center for the History of Medicine, and the University of Michigan Press. Click here for more information about the book.
Please consider attending the Health Services Research Group Launch Symposium at the North Campus Research Complex (Building 18) on Thursday, May 26, 7:30am - 5:00 pm. The purpose is to discuss the HSR Group's goals and future plans, discuss relevant topics in healthcare policy, and network with colleagues. Even if you are unable to attend, go to the registration page to indicate your interest in health services research and health policy so that you may be contacted again in the future. Click here to register.
In addition, there is an effort to collect information on all HSR groups on campus for purposes of networking and for junior investigators or newcomers to U-M to find colleagues and collaborators. Preliminary information will be provided at the Symposium and later a Wiki website will be created. Please send the main research theme(s) of the group/center; rough idea about the investigators, divisions, departments, schools; website URL, if applicable; seminar information, if applicable; and contact information to Joe Zogaib at firstname.lastname@example.org.
The Genetics in Primary Care Institute recently launched its new website, featuring co-chairperson Beth Tarini, M.D., assistant professor of pediatrics at the University of Michigan’s C.S. Mott Children’s Hospital.
Along with Robert Saul, M.D., Tarini co-chairs the Institute, which aims to take genetic advances made during the last decade and help make them useful in the practice of primary care pediatrics.
The new website, www.geneticsinprimarycare.org, features information for primary care providers related to genetics testing, ethical, legal and social issues, patient communication and family history.
Tarini’s research focuses on the communication process and the health outcomes associated with genetic testing in pediatrics. She is particularly interested in pediatric population-based screening programs, such as newborn screening. Through her research, Tarini seeks to optimize communication about genetic testing between parents and providers in an effort to maximize health and minimize harm.