Scott Roberts, PhD, is Professor of Health Behavior & Health Education at the University of Michigan’s School of Public Health (U-M SPH), where he directs the School’s Public Health Genetics program and teaches a course on public health ethics. A clinical psychologist by training, Dr. Roberts conducts research on the psychosocial implications of genetic testing for adult-onset diseases.
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Dr. Langa is the Cyrus Sturgis Professor in the Department of Internal Medicine and Institute for Social Research, a Research Scientist in the Veterans Affairs Center for Clinical Management Research, and an Associate Director of the Institute of Gerontology, all at the University of Michigan. He is also Associate Director of the Health and Retirement Study (HRS), a National Institute on Aging funded longitudinal study of 20,000 adults in the United States ( http://hrsonline.isr.umich.edu ).
Beth A. Tarini is an Associate Professor of Pediatrics & Division Director of General Pediatrics and Adolescent Medicine at the University of Iowa. Before that, she was an Assistant Professor in the UM Department of Pediatrics and Communicable Diseases. She received her MD from Albert Einstein College of Medicine (2001) and a master's degree from the University of Washington (2006), where she was a Robert Wood Johnson Clinical Scholar. In addition to her clinical interest in preventative care, she pursues an active research program on issues of newborn screening and genetic testing.
This symposium will promote dialogue and contribute to a research agenda on how learning health system organizers should engage the ethical, legal and social implications of this work.
The next generation of health information technology organizes data into large, networked systems to address challenges of U.S. health systems: spiraling costs, poor health outcomes, safety issues, unproductive research enterprises, and failure to implement known clinical best practices. More than simply “Big Data,” these systems are arranged as “learning health systems,” multi-stakeholder federations that gather and analyze data to create useful knowledge that is disseminated to all stakeholders. Harnessing the power of health data for learning strains ethical, legal, and social paradigms for how health information should be collected, stored, accessed, used, and destroyed.
CBSSM is a co-sponsor, along with the Brehm Center, the Michigan Institute for Clinical and Health Research (MICHR), the School of Public Health, and Healthcare Information and Management Systems Society (HIMSS).
Dr. Firn has a BS from Michigan State University, MSW from the University of Michigan, and PhD from Lancaster University (UK). Janice is a Clinical Assistant Professor in the Department of Learning Health Sciences (DLHS), Division of Professional Education. Before DLHS, Janice worked in oncology and palliative care at Michigan Medicine. She is also part of the Center for Bioethics and Social Sciences in Medicine (CBSSM), and serves as a Clinical Ethicist for the Clinical Ethics Service.
Dr. Marks is associate director of the adult Palliative and Supportive Care Clinic at the East Ann Arbor Health and Geriatrics Center, as well as the Adult Palliative Care medical director at Arbor Hospice. He received his medical degree and masters of public health from the Wisconsin School of Medicine and Public Health in Madison, Wisconsin. He completed his combined internal medicine-pediatrics residency at the University of Michigan, where he also completed his fellowship training in palliative care.
Jody Platt, PhD, MPH is an Assistant Professor in the Department of Learning Health Sciences, Division of Learning and Knowledge Systems. She received her MPH and PhD from the University of Michigan School of Public Health in health policy, with a concentration in medical sociology. Her research interests are in trust in health and health care, and the ethical, legal, and social implications of learning health systems, precision medicine, and big health data.
Dr. Lauren Smith is a Clinical Professor in the Department of Pathology at the University of Michigan specializing in hematopathology. She is Director of the Ethics Path of Excellence at the Medical School. She has been a member of the University of Michigan Adult Ethics Committee since 2005 and also serves as a Faculty Ethicist in CBSSM's Clinical Ethics Service. She is Chair of the Michigan State Medical Society Ethics Committee. Her research interests include ethical issues in clinical medicine and pathology.
The Center for Bioethics and Social Sciences in Medicine (CBSSM) Research Colloquium was held Wednesday, April 27, 2016 at the Founders Room, Alumni Center, 200 Fletcher Street, Ann Arbor, MI 48109.
The CBSSM Research Colloquium featured the Bishop Lecture in Bioethics as the keynote address. William Dale, MD, PhD presented the Bishop Lecture with a talk entitled: "Why Do We So Often Overtreat, Undertreat, and Mistreat Older Adults with Cancer?"
William Dale, MD, PhD is Associate Professor of Medicine and Chief, Section of Geriatrics & Palliative Medicine & Director, SOCARE Clinic at the University of Chicago. A geriatrician with a doctorate in health policy and extensive experience in oncology, Dr. Dale has devoted his career to the care of older adults with cancer -- particularly prostate cancer. Dr. Dale has a special interest in the identification and treatment of vulnerable older patients who have complex medical conditions, including cancer. He is actively researching the interactions of cancer therapies with changes associated with aging.
The 2016 Research Colloquium Presentation Schedule:
- 8:30 AM -- Check in & refreshments
- 9:00 AM -- Welcome
- 9:05 AM -- Katrina Hauschildt, MA, PhD Candidate, Department of Sociology: "Language and Communication as Professionalization Projects in Clinical Ethics Consultation"
- 9:30 AM -- Devan Stahl, PhD, Assistant Professor of Clinical Ethics, MSU: "Is there a right not to know?"
- 9:55 AM -- Chithra Perumalswami, MD MSc, Robert Wood Johnson Foundation/Veterans Affairs Clinical Scholar: "Insurance Status of Elderly Americans and Location of Death"
- 10:20 AM -- Break
- 10:35 AM -- William Dale, MD, PhD, 2016 Bishop Lecture in Bioethics: "Why Do We So Often Overtreat, Undertreat, and Mistreat Older Adults with Cancer?"
- 12:00 PM -- Lunch
- 12:45 PM -- Lauren B. Smith, M.D., Associate Professor, Department of Pathology/Ginny Sheffield, UM Medical Student (M3): "Special treatment for the VIP patient: Is it ethical? Is it dangerous?"
- 1:10 PM -- Naomi Laventhal, MD, MA, Assistant Professor, Department of Pediatrics and Communicable Diseases: "Roman Charity Redux: The Moral Obligations of the Breastfeeding Physician"
- 1:35 PM -- Archana Bharadwaj, Graduate Student, UM School of Public Health: "Patient understanding and satisfaction regarding the clinical use of whole genome sequencing: Findings from the MedSeq Project"
- 2:00 PM -- Kayte Spector-Bagdady, JD, MBioethics, CBSSM Postdoctoral Research Fellow: "Direct‐to‐Consumer Biobanking"
- 2:25 PM -- Break
- 2:40 PM --Panel Presentation (Susan Goold, MD, MHSA, MA & colleagues) : "Community engagement in setting research priorities: Representation, Participation and Evaluation"
- Why (and how) was CBPR supported in DECIDERS?
- How were communities represented in DECIDERS decision making?
- Why and how was the partnership evaluated?
- How were the 47 focus groups engaged in setting research priorities?
Andrew Shuman delivered the inaugural C.T. Lee Endowed Lectureship on Humanistic Compassionate Care to the Department of Surgery of Yale University.