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CBSSM Seminar: Barbara Koenig, PhD

Thu, October 23, 2014, 3:00pm to 4:00pm
Location: 
NCRC 16-266C

Barbara Koenig, PhD
Professor of Medical Anthropology & Bioethics Dept. of Social & Behavioral Sciences
Institute for Health & Aging, UCSF

“Revisiting the “Race” Issue in Genomics”

Summary: Throughout the post-genomic era, efforts to categorize human populations according to geographical ancestry have been contentious. How does genetic variation map on to social categories of difference? How can researchers seeking to understand health disparities—or to interrogate diseases associated with particular genetic variants—pay attention simultaneously to race as social identity, and biological characteristic?

CBSSM Seminar: Stephanie Kukora, MD

Wed, November 05, 2014, 3:00pm to 4:00pm
Location: 
NCRC 16-266C

Stephanie Kukora, MD
Neonatal-Perinatal Medicine Fellow

"Choosing Wisely: using past medical decisions in allocating scarce ECMO resources"

This talk will examine the ethical complexities of distributing limited ECMO resources to a growing population of eligible patients across the age spectrum and varying prognosis, describe the ramifications of influenza vaccine refusal among otherwise healthy adults, and explore the moral permissibility of allocating scarce ECMO resources based on previous medical decision-making, such as declining the seasonal influenza vaccine.

CBSSM Seminar: Kevin Kerber, MD

Wed, December 03, 2014, 3:00pm to 4:00pm
Location: 
NCRC 16-266C

 Kevin Kerber, MD
Associate Professor of Neurology, Medical School
Director, Dizziness Clinic

Title: Implementation of Evidence-Based Practice for Benign Paroxysmal Positional Vertigo

Summary: A wide gap exists between the evidence-base for processes to diagnose and treat Benign Paroxysmal Positional Vertigo (BPPV) and the use of these processes in real world medicine. The investigators will present their work-in-progress regarding an implementation strategy to increase the use of BPPV processes in emergency department presentations of dizziness.

Thu, September 11, 2014

Brian Zikmund-Fisher, Nicole Exe, and Holly Witteman’s study “Numeracy and Literacy Independently Predict Patients’ Ability to Identify Out-of-Range Test Results” in the Journal of Medical Internet Research was featured in Modern Healthcare and other media outlets. The articles discuss patients' understanding and informed decision making when they have direct access to lab reports and test results. In the Wall Street Journal, Dr. Zikmund-Fisher was quoted, "If we don't make it clear to patients what these numbers mean, we can't expect them to know what to do."

Thu, September 18, 2014

A new study put out by senior author Beth Tarini, MD, MS, shows that primary care doctors report challenges to incorporating genetics assessments in routine primary care. Dr. Tarini commented, "Genetics is not just about rare diseases and specialists. PCPs [Primary Care physicians] rely on genetics frequently during preventive care visits – especially when taking family histories and assessing a patient’s risk of more common, but chronic, diseases. So the fact that PCPs report many barriers to embracing and performing these tasks is concerning," The study also found that many Primary Care physicians feel as though their expertise on genetic medicine is insufficient.

Susan Dorr Goold, M.D., M.H.S.A., M.A., professor of Internal Medicine, and Health Management and Policy, was awarded a two-year, $391,000 grant from the Agency for Healthcare Research and Quality (AHRQ) to engage Michigan communities in deliberations about Medicaid priorities. Led by Goold and community partner Zachary Rowe, the project will engage communities in a priority setting exercise using the Choosing Health Plans All Together (CHAT) exercise. The award-winning CHAT tool provides structure, feedback and adaptability. It has a been used by multiple policy makers and community organizations, and a solid record of published research.

 

Valerie Kahn, MPH

Center Manager

Valerie joined CBSSM as the Center Manager in the fall of 2012 after working as a Project Manager at CBSSM since 2009. Valerie continues her work on research projects involving medical decision making and doctor-patient communication. Valerie received her MPH in Health Behavior Health Education from the University of Michigan.

 

 
Last Name: 
Kahn

Chris Krenz, BA

Research Associate

Chris Krenz joined CBSSM in the fall of 2014. He received his BA in Sociology from the University of Michigan, minoring in Philosophy. Before coming to CBSSM, Chris was located at the Institute for Social Research, working on projects concerning the health of Pacific Islanders and other minority populations.

Chris primarily works with Dr. Raymond De Vries on a study exploring factors that influence whether biobank donors provide consent for their biological material to be used in research.

Research Interests: 
Last Name: 
Krenz
Tue, January 16, 2018

CBSSM Director, Reshma Jagsi was recently interviewed for the LA Times article, "Will medicine be the next field to face a sexual harassment reckoning?" This article discusses her 2014 survey on sexual harassment and gender bias in academic medicine, as well as her recent article on the #MeToo movement as it relates to medicine in the New England Journal of Medicine.

Funded by: National Cancer Institute (NCI)

Funding Years: 2016-2021

The development of Learning health systems is causing radical transformation of the environment within which the NCI pursues its Mission; understanding the Ethical and social implications of these changes is of paramount importance. In rapid Learning systems (RLS), routinely collected Patient data drive the process of discovery, which in turn becomes a natural outgrowth of clinical care. As the Institute of Medicine has noted, such systems have substantial promise for improving the quality of care and research, and ultimately the value of health care. As such systems develop, the blurring of the current distinction between clinical practice, quality of care, and research necessitates careful consideration of Ethical implications. As RLSs are in their infancy, it is critical to conduct research to generate informed and considered Patient perceptions of the ethical implementation of such systems, particularly regarding ways to ensure respect for Patient autonomy and privacy, including best approaches for informing participants and governance of data use, in order to realize the potential benefits of these systems. Therefore, we propose an innovative study that uses cutting edge methods of deliberative democracy to generate considered and informed opinions of cancer Patients, leveraging a unique opportunity to evaluate Patient experiences during the roll-out of a real-world RLS. Specifically, the American Society of Clinical Oncology (ASCO) has developed a real-world Oncology RLS known as CancerLinQ. CancerLinQ is being implemented in 15 vanguard practices over the next year, and the approach to Patient notification/consent and data governance in this System is actively evolving. We propose an empirical Investigation with two distinct approaches and aims, in collaboration with ASCO and its vanguard practices. First, we will use a deliberative democracy approach to determine the range of informed and considered individual and group opinions and recommendations of cancer Patients on the optimal approach for obtaining Consent and appropriate uses of information routinely collected in the course of medical care as part of a RLS that seeks to improve quality and advance research. Second, following CancerLinQ roll-out, we will survey Patients experiencing the real-world Implementation of this RLS in order to evaluate their knowledge and perceptions of that System. Conducting the proposed work in parallel with the development of a real-world RLS provides an opportunity to directly inform the development and Implementation of a national learning system that will ultimately impact tens of thousands of Patients, and it also allows for the consideration of real- life rather than purely hypothetical scenarios in ways that increase the likelihood that these investigations will yield insights that are directly applicable in other settings. the findings will have substantial relevance to the research Mission of the NCI, as Oncology Learning systems are fundamentally altering the context for research across the spectrum of cancer causation, diagnosis, Prevention, treatment, and survivorship care. For more info: http://grantome.com/grant/NIH/R01-CA201356-01A1

PI: Reshma Jagsi, MD. PhD. 

CO(s): Raymond De Vries, PhD. & Sarah Hawley, PhD, MPH

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