Dr. Aisha Langford was a VA and CBSSM Postdoctoral Research Fellow, 2013-2015. She received her PhD from the department of Health Behavior and Health Education at the University of Michigan School of Public Health in Ann Arbor. From 2007 -2013, she directed the University of Michigan Comprehensive Cancer Center’s Community Outreach Program. Her research interests include chronic disease prevention and control, health communications, medical decision making, and clinical trial participation. Aisha is from the San Francisco Bay Area and earned her BA from the University of Virginia.
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CBSSM recently co-hosted the panel "Incidental Findings in Clinical Exome and Genome Sequencing: The Drama and the Data" featuring Robert C. Green, MD, MPH, Associate Professor of Medicine, Division of Genetics at Brigham and Women’s Hospital and Harvard Medical School, as the keynote speaker. The panel included a lively and interesting discussion.
Panel presenters were Jeffrey W. Innis, MD, PhD, Morton S. and Henrietta K. Sellner Professor in Human Genetics and Director, Division of Pediatric Genetics, and Wendy R. Uhlmann, MS, CGC, Clinical Associate Professor, Department of Internal Medicine and Department of Human Genetics. The panel was moderated by Sharon L.R. Kardia, PhD, Director, Public Health Genetics Program and the Life Sciences and Society Program, School of Public Health, University of Michigan.
This event was co-sponsored by CBSSM, the Department of Human Genetics, Genetic Counseling Program, and Life Sciences and Society, Department of Epidemiology.
Kerry Ryan joined CBSSM in July 2010. Kerry has a BA in History (Kalamazoo College) and MA in Sociology (University of Michigan). Before joining CBSSM, Kerry worked as a research assistant and an academic advisor. She has been involved with research related to the effects of community violence and prenatal cocaine exposure; college student academic success and retention; at-risk women’s child-bearing decisions in the context of genetic testing and discrimination; surrogate consent for research; and therapeutic misconception. She currently works with Dr. Raymond De Vries and Dr.
Dr. Aaron Scherer was a CBSSM Postdoctoral Research Fellow, 2014-2016. Aaron earned his PhD in Psychology from the University of Iowa and utilizes methodologies from social psychology, social cognition, and neuropsychology to study the causes and consequencdees of biased beliefs. His current research has focused on the causes and consequences of biased beliefs regarding health and politics.
This symposium will promote dialogue and contribute to a research agenda on how learning health system organizers should engage the ethical, legal and social implications of this work.
The next generation of health information technology organizes data into large, networked systems to address challenges of U.S. health systems: spiraling costs, poor health outcomes, safety issues, unproductive research enterprises, and failure to implement known clinical best practices. More than simply “Big Data,” these systems are arranged as “learning health systems,” multi-stakeholder federations that gather and analyze data to create useful knowledge that is disseminated to all stakeholders. Harnessing the power of health data for learning strains ethical, legal, and social paradigms for how health information should be collected, stored, accessed, used, and destroyed.
CBSSM is a co-sponsor, along with the Brehm Center, the Michigan Institute for Clinical and Health Research (MICHR), the School of Public Health, and Healthcare Information and Management Systems Society (HIMSS).
At CBSSM, we perform the basic and applied scientific research that will improve health care policy and practice to benefit patients and their families, health care providers, third-party payers, policy makers, and the general public. In our "Interactive Decision" web feature, we turn a recent research finding into an interactive decision that a patient or policy maker might face. Read, decide, click—and see how your answers compare with our respondents.
Dr. Jacob Solomon was a CBSSM Postdoctoral Research Fellow, 2015-2017.
Jacob Solomon completed a PhD in Media and Information Studies at Michigan State University in 2015. His research is focused on Human-Computer Interaction and Human Factors Engineering where he studies how the design of interactive systems affects users’ behavior. His research merges methods from social sciences with computer and information science to design, build, and evaluate socio-technical systems.
Chithra Perumalswami is a general internist and palliative care specialist. After training at the University of Michigan for undergraduate (English and Cellular and Molecular Biology) and graduate school (medical school & residency), she worked at Northwestern University as a clinician educator in hospital medicine. During that time, she trained in hospice and palliative medicine and also worked on several local and statewide quality improvement initiatives.
Funded by National Institutes of Health; Nationatal Institute on Aging
Funding Years: 2012-2017
A cornerstone of the nation’s social science research infrastructure, the Panel Study of Income Dynamics (PSID) is a longitudinal survey of a nationally representative sample of U.S. families. Begun in 1968, 36 waves of data have now been collected on PSID families and their descendents. Its long-term measures of economic and social well-being have spurred researchers and policy makers to attend to the fundamental dynamism inherent in social and behavioral processes. This project collects, processes, and disseminates three modules in the 2013 and 2015 waves of the PSID:
1.Health module: Including 15 minutes of survey questions on health status, health behaviors, health insurance coverage & health care costs. Linkages to the National Death Index and Medicare will be extended;
2.Wealth module: Including 10 minutes of survey questions on wealth, active savings, and pensions. Linkage to Social Security earnings and benefits records for active sample and decedents will be undertaken for the first time, and a new module to minimize errors in reports of wealth changes will be developed and implemented; and
3.Well-being module with related psychosocial measures: A mixed-mode (web/mail out) questionnaire to collect content from both respondents and spouses about their well-being and related psychosocial measures (e.g., personality, intelligence), with an experiment to identify (and allow researchers to adjust for if necessary) mode effects.
PI(s): Robert Schoeni
Co-I(s): Mick Couper, Vicki Freedman, Katherine McGonagle
Brian Zikmund-Fisher, Angela Fagerlin, Nicole Exe, and Knoll Larkin have been involved in the Visualizing Health Project, which has recently launched an online style guide for communicating health data. You can check it out at: www.vizhealth.org
The Visualizing Health project was a short and highly intense project funded by the Robert Wood Johnson Foundation designed to push the envelope both in considering visual designs for communicating health risk data and in developing iterative research approaches for testing them. The project involved a large team combining researchers and staff from both the University of Michigan's Center for Health Communications Research and the Center for Bioethics and Social Sciences in Medicine. The UM team then worked closely on a week by week basis with Thomas Goetz (former editor of Wired magazine) who envisioned the project, Tim Leong (graphic designer, author of Super Graphic), Andrea Ducas from the Robert Wood Johnson Foundation, and teams of graphic designers that Tim recruited.
They created 16 distinct visual data display tasks related to health risks, had teams of graphic designers develop display concepts, and iteratively tested these displays using multiple online survey methodologies. The resulting designs and data were then assembled in a project website that included all the images, plus commentary and additional features such as a design "wizard" to help guide users to visual displays that best fit their personal needs.
Also, see the Robert Wood Johnson Foundation Culture of health blog.