Dr. Aisha Langford was a VA and CBSSM Postdoctoral Research Fellow, 2013-2015. She received her PhD from the department of Health Behavior and Health Education at the University of Michigan School of Public Health in Ann Arbor. From 2007 -2013, she directed the University of Michigan Comprehensive Cancer Center’s Community Outreach Program. Her research interests include chronic disease prevention and control, health communications, medical decision making, and clinical trial participation. Aisha is from the San Francisco Bay Area and earned her BA from the University of Virginia.
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CBSSM recently co-hosted the panel "Incidental Findings in Clinical Exome and Genome Sequencing: The Drama and the Data" featuring Robert C. Green, MD, MPH, Associate Professor of Medicine, Division of Genetics at Brigham and Women’s Hospital and Harvard Medical School, as the keynote speaker. The panel included a lively and interesting discussion.
Panel presenters were Jeffrey W. Innis, MD, PhD, Morton S. and Henrietta K. Sellner Professor in Human Genetics and Director, Division of Pediatric Genetics, and Wendy R. Uhlmann, MS, CGC, Clinical Associate Professor, Department of Internal Medicine and Department of Human Genetics. The panel was moderated by Sharon L.R. Kardia, PhD, Director, Public Health Genetics Program and the Life Sciences and Society Program, School of Public Health, University of Michigan.
This event was co-sponsored by CBSSM, the Department of Human Genetics, Genetic Counseling Program, and Life Sciences and Society, Department of Epidemiology.
CBSSM affiliates will be presenting at the WMU Ethics Center Conference: "Bioethics: Preparing for the Unknown" (March 17-18th).
CBSSM Postdoc Kayte Spector-Bagdady: “The Google of Personalized Healthcare: 23andMe and Enabling the Privatization of Genetic Biobanking"
Lan Le, Natalie Bartnik, Michele C. Gornick and Nicole Exe: “Examining the Psychosocial and Ethical Issues Arising from the Identification, Disclosure and Communication of Genomic Results to Patients and Clinicians,” Chair: Raymond De Vries
Other presentations with CBSSM/UM bioethics connections include:
"Patient Understanding and Satisfaction Regarding the Clinical Use of Whole
Genome Sequencing: Findings from the MedSeq Project," Archana Bharadwaj, School of Public Health
"The Voice is As Mighty as the Pen: Integrating Conversations Into Advance Care
Planning Policies," Kunal Bailoor, UM Medical School
Here is the link to the the program: http://www.mywmu.com/s/1428/images/gid2/editor_documents/events/prelimin...
Here is the link to register: http://www.mywmu.com/s/1428/gid2/index.aspx?sid=1428&gid=2&pgid=2900&con...
Kerry Ryan joined CBSSM in July 2010. Kerry has a BA in History (Kalamazoo College) and MA in Sociology (University of Michigan). Before joining CBSSM, Kerry worked as a research assistant and an academic advisor. She has been involved with research related to the effects of community violence and prenatal cocaine exposure; college student academic success and retention; at-risk women’s child-bearing decisions in the context of genetic testing and discrimination; surrogate consent for research; and therapeutic misconception. She currently works with Dr. Raymond De Vries and Dr.
Dr. Aaron Scherer was a CBSSM Postdoctoral Research Fellow, 2014-2016. Aaron earned his PhD in Psychology from the University of Iowa and utilizes methodologies from social psychology, social cognition, and neuropsychology to study the causes and consequencdees of biased beliefs. His current research has focused on the causes and consequences of biased beliefs regarding health and politics.
Cheryl A. Moyer, MPH, PhD
Assistant Professor, Learning Health Sciences
Assistant Professor, Obstetrics and Gynecology
Using GIS and Social Autopsy to understand where and why mothers and babies are dying in rural northern Ghana
Abstract: Cheryl Moyer, PhD, MPH, Assistant Professor of Learning Health Sciences and Obstetrics & Gynecology, will describe a 3-year, USAID-funded project that involves identifying all maternal and neonatal deaths and ‘near-misses’ (those who survive a life-threatening event) across four districts in northern Ghana and conducting detailed verbal and social autopsies to determine both the biomedical cause of death and the sociocultural contributors. The project, known as PREMAND (PREventing Maternal And Neonatal Deaths), also involves geocoding the location of births, deaths, health facilities, traditional healer compounds, and other important landmarks to explore the role of geography in influencing outcomes.
This symposium will promote dialogue and contribute to a research agenda on how learning health system organizers should engage the ethical, legal and social implications of this work.
The next generation of health information technology organizes data into large, networked systems to address challenges of U.S. health systems: spiraling costs, poor health outcomes, safety issues, unproductive research enterprises, and failure to implement known clinical best practices. More than simply “Big Data,” these systems are arranged as “learning health systems,” multi-stakeholder federations that gather and analyze data to create useful knowledge that is disseminated to all stakeholders. Harnessing the power of health data for learning strains ethical, legal, and social paradigms for how health information should be collected, stored, accessed, used, and destroyed.
CBSSM is a co-sponsor, along with the Brehm Center, the Michigan Institute for Clinical and Health Research (MICHR), the School of Public Health, and Healthcare Information and Management Systems Society (HIMSS).
Michele Gornick, PhD
VA HSRD Fellow & CBSSM Research Investigator
Title: The public’s preferences for the return of secondary findings identified through genome sequencing: Information and deliberation make a difference
Summary: Genomic sequencing is becoming a part of clinical practice. Existing studies are limited and conclude that people would like unrestricted access to all of their genetic information. However, we do not know the extent to which respondents in these studies took into account the complex scientific and ethical issues that attend genome sequencing. In order to address this gap, we organized a deliberative democracy (DD) session to educate members of the public on genome sequencing, to engage them in dialogue about the benefits and risks of the clinical implementation of this technology, and to elicit their informed perspectives about policies governing the return of secondary findings.