Funded by the National Institutes of Health
Funding years: 2009-2014
The proposed project aims to explore and examine the experiences and preferences regarding communication about positive newborn screening results of key stakeholders (parents, primary care physicians, clinical geneticists, and state newborn screening officials) involved in the three key stages: notification about the initial positive screen; follow-up testing and evaluation; and parental notification of the final results of the evaluation. For more information, visit NIH Reporter.
PI: Beth Tarini