Kayte Spector-Bagdady and Nicholson Price were interviewed for the Medicine at Michigan article, "A Shadow of Oneself: How your everyday actions create unregulated health data." They recently published a piece in Science about health care data that fall outside the scope of HIPAA regulations. When paired with existing health care information, these data, often collected online, are called “shadow” records. Less regulated than their HIPAA-bound counterparts, shadow records have proven helpful investigative tools for the medical field. However, there are concerns regarding the mishandling and selling of data, such as the potential for insurers to “identify high-cost patients to avoid,” or for targeted marketing strategies to exploit personal information.
