Attitudes toward Return of Secondary Results in Genomic Sequencing (Sep-16)

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Imagine you are at the doctor’s office because you (or your child) have a serious health condition like heart disease or cancer. To help find out whether any treatment options exist, your doctor suggests that you (or your child) have your genome sequenced.

Genome sequencing may provide information about your (or your child’s) current health condition. However, the genome sequencing could reveal additional and unexpected results not related to the current condition. The doctor wants to know what types of these secondary results you would want to be told.